Skip to main content

Thoughtful Thursday - Itch from Hell



Sometimes, when I have a bad day, I think I'm the target of some cruel joke. My life hasn't turned out the way I planned. Some things are going well. I've gotten some short stories published and will have books in my hands very soon that I can sell to fund my novel. That's surreal. I need someone to pinch me so I know I'm not just having a good dream.
My health is an area that makes me really sad at times. It's where I keep taking the most hits. I started having symptoms at age 14. My parotid salivary glands would swell up. It's always painful when that happens.

In my twenties, I experienced an episode of sleep paralysis while hallucinating. It wasn't until about 5 years after that, they said I had narcolepsy. I lived with that for 3 years until no stimulant medication helped and I had the symptoms of stroke so took myself off the meds. My body had decided it wasn't narcoleptic anymore. This was all proven both times by the tests.

After that it was discovered that I was sensitive to dairy, eggs, and yeast. That has been a fun diet.

Next, I began having joint pain. I remembered during a check for carpal tunnel in my twenties that I had a positive RA factor. So I got some blood tests done and was sent to a rheumatologist. 

Many of my symptoms match an autoimmune disorder. One that features dryness, so stimulants were about the worse thing I could be on. The trouble is that my body is again rejecting medication. Rather violently through a rash. As a baby, I reacted this way to penicillin.

So I'm at a loss right now as I feel rather like I'm in hell. I've been reacting since the 8th, despite hydrocortisone cream, allergy medicine, baking soda baths, tea tree oil, antifungal cream, aloe, calamine, apple cider vinegar, and diaper rash cream.

It's clear my body is pissed off for some reason.

I see my specialist tomorrow. Hopefully she'll know what to do. 

Until then, I expect to have another night of difficulty sleeping. 

I wish I could trade skin with someone.

I'm exhausted but too itchy to sleep and I just want to cry.

R~

Popular posts from this blog

2024 - Week 5

It was still January for most of this week, a.k.a. The Neverending Month. Then it became February!  Each month, I do pull a card from my Music Oracles deck. Last month was Bob Marley. February's card is Nina Simone. A piano playing rebel & multiple genre legend will hopefully make for a phenomenal month ahead. I still haven't done a goals post for 2024. January was a lot. My goals for this year are: - Complete Sparker  and query agents. - Complete The Curse of...  and submit it to a screenplay contest. - Complete the declutter of Tiny Condo. - Blog at least once per week. - Cross train for curling and softball. - Learn piano. - Self-care with crafts, reading, gaming, and sports. I've tweaked my schedule to make this happen. I'd also like a partner, but I feel weird about setting it as a goal.

2024 - Week 43

Arts & Crafts  I started a summer quilt. I got the fabric a long time ago and it was a straightforward quilt as I just had to join the 20 fat quarters together. I'll need a backing fabric and a border to complete it, but I figured it's worth doing while the weather continues to be summery. I'm thinking a white backing and pink for the border. I've made progress on my Fairy Cross-Stitch, but there is a lot to go yet.  Decluttering & Minimalism I started the week by working on the space to sand my shelf. I didn't get through it all on Monday with work and everything else that day, but it was closer than it was before. Tuesday was curling, so I couldn't the shelf done then. I was really tired on Wednesday because I'm not used to curling being so late yet. Thursday was the last day of softball. It was Friday before I could really work on the shelf, though I kept working on the workspace. The packed weekend left me no time to do this, but I realistically ...

ROW80 2020 R4 - GOALS

I've gotten zero writing done recently, however, I had other pressing things.  HOME As my new bed frame was due for arrival last Friday (more on this later), I hauled ass and purged a bunch more stuff from my home. I brought a full carload to donation and started loading up again. I also dealt with my old mattress, which I'm repurposing for a couch. Now, I didn't fully complete it as I haven't figured out all the pieces, but I did get it cut up appropriately and moved out of my bedroom. I'm currently sewing it back together. As for my bedroom, I was able to do a major declutter and access areas I haven't been able to in months. But that area now has bathroom stuff in it. There is more to do, but I'm really happy with my progress of late. I've cut myself numerous times on the couch project including my heel finding a tiny piece of glass, my palm finding a wayward staple, my knuckle finding who knows what, my one thumb having a run in with a box cutter, an...